I was 22 weeks pregnant when Darcie was diagnosed. I hoped and prayed this nightmare would be over before our baby was born. I worried how we would juggle a newborn and Darcie’s chemo. I wanted my family all under one roof. My husband John spent all the nights with Darcie because I was pregnant. I felt so guilty when I couldn't be there with her while I was in the Coombe giving birth to our son Cole. Darcie was in Crumlin fighting an infection as her immune system was so weak. Cole was 4 days old when Darcie had her last round of chemo.

From the day we walked through the doors of Crumlin hospital they have been like another family to us. Darcie repeatedly asks when she can see Dr. Jane. She really bonded with 1 of the play therapists, Carol on St John's ward. Carol was absolutely fantastic with Darcie. She was always so frightened and would scream from the second she walked through the doors. CJ would do Darcie's bloods and dressing every week. Although she screamed and fought off staff, everyone tried so hard to make the experience less upsetting for Darcie. Stickers, videos, toys, songs. Nothing worked, but they never stopped trying.

Darcie was really upset one day when she was in isolation and couldn't leave her room. She wouldn't let us hug, hold or comfort her. She could see the garden and the sun shining through the window. How do you get a 2-year-old to understand that she can't play with the toys, go to the playroom, or go out in the garden? It was then that the Music Therapy crew went around the ward playing songs on different instruments for the children. One of the guys played ‘In the Jungle’ on a ukulele. For the first time in almost three weeks, Darcie smiled, clapped her hands, and tried to dance.